The Peripheral Neuropathy Research Registry (PNRR) is a biomarker, DNA, and
data repository designed to help researchers access detailed proteomic, genomic,
and phenotypic history and neurological examination information about people
with painful and non-painful peripheral neuropathies.
Peripheral neuropathy is the manifestation of many different conditions that can
damage the peripheral nerves and is considered a neurological disorder rather than
one distinct disease. PNRR focusses on painful neuropathies, often considered the
most debilitating. Painful neuropathies include diabetic, idiopathic,
chemotherapy-induced and HIV/AIDS peripheral neuropathies.
With funding from the Foundation for Peripheral Neuropathy (FPN), PNRR began enrolling patients in 2011.
Currently, patients are enrolled in the registry through five clinical research sites
across the United States.