The Peripheral Neuropathy Research Registry (PNRR) is a biomarker, DNA, and data repository designed to help researchers access detailed proteomic, genomic, and phenotypic history and neurological examination information about people with painful and non-painful peripheral neuropathies.
Peripheral neuropathy is the manifestation of many different conditions that can damage the peripheral nerves and is considered a neurological disorder rather than one distinct disease. PNRR focusses on painful neuropathies, often considered the most debilitating. Painful neuropathies include diabetic, idiopathic, chemotherapy-induced and HIV/AIDS peripheral neuropathies.
With funding from the Foundation for Peripheral Neuropathy (FPN), PNRR began enrolling patients in 2011. Currently, patients are enrolled in the registry through seven clinical research sites across the United States.